Shaping the Future of Health Data Privacy

Navigating Health Data Privacy


As healthcare rapidly embraces AI and digital transformation, the privacy landscape is shifting in real time. Tina Grande, Healthcare Trust Institute’s President &CEO, brought together the nation’s leading experts, including Citizen Health’s Deven McGraw and Omada Health’s Lucia Savage, for the highly anticipated  ADAPT (Advancing Data, Access, Privacy, & Trust) Conference, where attendees will help shape a 3–5 year forecast highlighting how evolving privacy rules, risks, and technologies will impact trust, regulation, and innovation in healthcare. Beyond compliance, this forecast will offer strategic, operational, and public policy insights to support proactive planning in a volatile environment—highlighting everything from cybersecurity threats and liability risks to investments in data governance, trust frameworks, and patient engagement.

Register for the November 10-12 conference: ADAPT Conference 2025 in Palm Springs – Checkout 

Takeaways

  • Health data sharing is essential for improving healthcare quality.
  • HIPAA is often misunderstood, leading to confusion about privacy rights.
  • Patients should have control over their health information.
  • Technology in healthcare presents both opportunities and risks.
  • Trust is crucial for effective healthcare delivery and data sharing.
  • Consumers need to be aware of privacy policies and their implications.
  • Legislation is evolving to better protect health data.
  • Health apps can pose privacy risks if not properly managed.
  • The ADAPT conference aims to foster discussions on trust in healthcare.
  • Collaboration among stakeholders is key to improving health data privacy.
Chapters
00:00 Introduction to Health Data and Privacy
02:47 Understanding HIPAA and Its Implications
05:24 The Role of Technology in Health Data Management
08:17 Trust and Data Stewardship in Healthcare
11:22 Consumer Rights and Health Information
14:09 Privacy Concerns with Health Apps
17:02 The Impact of Legislation on Health Data
19:43 The Future of Health Data Privacy
22:34 Upcoming Conference: ADAPT
25:26 Personal Perspectives on Health Data and Privacy

Tina Grande, 
President and CEO, Healthcare Trust Institute

Tina Olson Grande, MHS, is President and Chief Executive Officer of the Healthcare Trust Institute (HTI), an alliance of the nation’s leading healthcare organizations committed to promoting and implementing effective privacy and security protections for health information that engender trust in the healthcare system and allow for the advancement of treatments, cures and improved healthcare quality for individuals and populations.
Tina Grande | LinkedIn

Favorite Song: Fields of Gold, Eva Cassidy and Nightingale, Tina’s Son


Deven McGraw is Chief Regulatory and Privacy Officer for Citizen Health, a platform for patients to gather, manage, and share their complete health histories (previously known as Ciitizen and divested from Invitae in late 2023). From 2015-2017, she directed U.S. health privacy and security policy as Deputy Director, Health Information Privacy at the HHS Office for Civil Rights and Chief Privacy Officer (Acting) of the Office of the National Coordinator for Health IT. Widely recognized for her health privacy expertise, she directed the Health Privacy Project at the Center for Democracy & Technology for six years, testifying before Congress on health privacy issues on multiple occasions.
Deven McGraw | LinkedIn

Favorite Song: Walking on Sunshine, Katrina & the Waves 

Deven McGraw
Chief Regulatory & Privacy Officer, Citizen Health

Lucia Savage
Chief Privacy & Regulatory Officer, Omada Health

Lucia Savage is the Chief Privacy & Regulatory Officer, Omada Health. Named “one of the largest patient privacy and digital health advocates” in the nation by SC Magazine (Sept. 2021) Ms. Savage embodies the strategic expertise needed for a 21st Century health care system. An experienced C-suite executive and board member, Ms. Savage advises CEO’s, Cabinet Secretaries, and Members of Congress on how health care can most effectively take advantage of ubiquity of digital tools, and how health care is evolving in the 21st Century.
Lucia Savage | LinkedIn

Favorite Song:  People Have The Power, Patti Smith

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